Frequently Asked Questions About this Registry
Who can enter data in this registry and how?
Any healthcare provider (physician, nurse practitioner or physician assistant) who treats patients with PML can enter data.
If you have never used this registry before, you need to first obtain a login.
Please click the “Login Request For Healthcare Providers” link on the right or on the top.
You will be asked to provide some basic information about yourself.
Once this information is verifed (usually after a few days), you will be given a username and password that allows you to access the Case Entry Form where you can enter information about your patient(s).
If you have any problems with this process, please use the email provided on the “contact us” link to ask for assistance.
How will the information collected in this registry be used?
The information collected will be used for research to better understand the incidence of PML, risk factors associated with developing PML and other factors that may help our understanding of and development of treatment strategies for PML.
The data collected can not be linked to individual patients and data will only be analyzed in anonymized form.
Findings based on data in this registry will be posted on the main page of the registry under the Annual Report page.
How can patients or their families use this registry?
In addition to collecting data about PML, this site also provides information about PML as well as links to further resources like clinical trials or scientific publications.
Please see “Resources” section on the right.
A summary of the findings obtained from the data in this registry will be posted annually under “Annual Report”.